Today was the big appointment. Good news: Isla grew a ½ inch in a month. She is now 26 inches long (5th %). Bad news: She has not gained ANY weight, not even a single ounce in a month and a half. Actually she probably lost weight but she had not had a bowel movement yet and after her weigh in she had 3 wet diapers in an hour. She weighs 13 pounds 8 ounces (not even on the charts). She was labeled as “failure to thrive” or FTT. We have a referral to see a different pediatric gastroenterologist- which is on Friday October 8th. They will do a scope with a biopsy. We also have a referral to see an endocrinologist. My doctor will make an “emergency” appointment after Isla’s scope results are in. 
There really could be a number of things wrong with her- we already know she has severe food allergies and colitis. On the gastro side it could be EE (Eosinophilic esophagitis), EC (esophageal colitis) or EG (esophageal gastritis). I do not yet know much about these conditions except that they all can cause malabsorption and are treatable. On the endocrine side it could be a growth hormone issue, a kidney problem, or a gland disorder.
We are in the process of figuring all this out. There will be many more doctors’ appointments to come and unfortunately more tests and procedures. The pediatrician urged me to go on FLMA and I already called my work to hopefully start the process- keeping my fingers crossed.
On a lighter note- Isla’s is on the high end of her age group when it comes to vocabulary! She says Mama, Dada, Book and Doggie! Well sometimes she says Boogie instead of Doggie! And she says all kinds of things that are unrecognizable. Developmentally she is doing great- she is crawling, sitting, pulling herself up to standing and walking along furniture- she can also stand unassisted for several seconds. Isla also had her appointment with Hanger (the helmet people) and she is right on track! She has made great improvements and will hopefully get her helmet off by her first birthday (12/22).
*To be quite honest I am a bit overwhelmed with all this. I haven’t had time to digest it all yet, hence why this post it more factual and not so emotional. I just can’t gather my thought very well right now.
Les, I know it's a lot to take in but we'll get it figured out. You have a wonderful support system and we're all here to help in any way we can. Whether that means emotional support and an ear for you to sound off or a should for you to cry on or simple logistical stuff like helping out where you need it. I love you and you're an amazing mother. Trevor is a wonderful father too and you guys are doing a great job.
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